By using this site, you agree to the Privacy Policy and Terms of Use.
Accept
Health Works CollectiveHealth Works CollectiveHealth Works Collective
  • Health
    • Mental Health
    Health
    Healthcare organizations are operating on slimmer profit margins than ever. One report in August showed that they are even lower than the beginning of the…
    Show More
    Top News
    headphones can create health problems
    The Harmful Health Effects of Using Headphones
    September 24, 2021
    Headache causes
    4 Causes Of Headache You Probably Didn’t Know About
    December 28, 2021
    follow these steps to recover from your injury
    What Steps Should You Take to Recover More Quickly from an Injury?
    April 12, 2022
    Latest News
    5 Steps to a Promising Career as a Healthcare Administrator
    August 3, 2025
    Why Custom Telemedicine Apps Outperform Off‑the‑Shelf Solutions
    July 20, 2025
    How Probate Planning Shapes the Future of Your Estate and Family Care
    July 17, 2025
    Beyond Nutrition: Everyday Foods That Support Whole-Body Health
    June 15, 2025
  • Policy and Law
    • Global Healthcare
    • Medical Ethics
    Policy and Law
    Get the latest updates about Insurance policies and Laws in the Healthcare industry for different geographical locations.
    Show More
    Top News
    Contraception for Techno-Doctors
    July 13, 2011
    ACP Ethics Manual on Social Media, Catastrophes, and More
    January 13, 2012
    Hippocratic Oath, Then and Now
    August 23, 2012
    Latest News
    How IT and Marketing Teams Can Collaborate to Protect Patient Trust
    July 17, 2025
    How Health Choices and Legal Actions Intersect After an Injury
    July 17, 2025
    How communities and healthcare providers can address slip and fall injuries with legal awareness
    July 17, 2025
    Let Your Lawyer Handle the Work Before You Pay Medical Costs
    July 6, 2025
  • Medical Innovations
  • News
  • Wellness
  • Tech
Search
© 2023 HealthWorks Collective. All Rights Reserved.
Reading: Addendum to Posts on How to Get Support Online–For Any Illness: patientslikeme
Share
Notification Show More
Font ResizerAa
Health Works CollectiveHealth Works Collective
Font ResizerAa
Search
Follow US
  • About
  • Contact
  • Privacy
© 2023 HealthWorks Collective. All Rights Reserved.
Health Works Collective > eHealth > Social Media > Addendum to Posts on How to Get Support Online–For Any Illness: patientslikeme
Social Media

Addendum to Posts on How to Get Support Online–For Any Illness: patientslikeme

Rhona Finkel
Rhona Finkel
Share
4 Min Read
SHARE

A quick but relevant addition to the posts on online support for medical conditions, if I may (see, for example, today’s “Getting Support for Bipolar Disorder

A quick but relevant addition to the posts on online support for medical conditions, if I may (see, for example, today’s “Getting Support for Bipolar Disorder Online,” or  last month’s “Twitter and Mental Health: Getting the Most Out of Your Tweeting Experience” for some mental health examples).

Patientslikeme is a support and informational site inclusive of 154,826 patients (at last count, to be precise), and over 1,000 medical conditions.

Drug addiction, prostate cancer, yeast infections, dysthymia, epilepsy, bipolar disorder, major depressive disorder. . . I’m really just getting going on the conditions addressed.

More Read

facebook dislike
Are You Wasting Your Time with Facebook?
Google + And Health Train Express
5 Ways Social Media Affects Teen Mental Health
Jumping into Health Care Social Media
Beyond the Buzz: Why SlideShare Should Be Part of Your Healthcare Social Media Mix

For starters you can explore treatment options. For each option–and they’re not all medications; individual therapies are included like cognitive behavioral therapy and peer counseling–you have overviews (purpose and efficacy, side effects, dosages, and reported adherence, burden and costs), patient evaluations, and general drug information.

And for each illness there are symptom reports (see epilepsy, for example), and then current research, which has a unique feature of matching you with appropriate clinical trials.

But most importantly you create a home page with your health data, providing your condition history (signup is free and can be done under a pseudonym). There’s a section called ‘My Journal,’ where, as the site explains,

is where you can come to tell your story. Every time you update your health data, you can come here to add a comment, photo or story to your update by clicking ‘Share more about your experience.’ This will help other patients learn more about what is going on with you.


The  second most crucial component (of many; it’s quite a multi-facted site) is your ‘Feed,’ which is, as they so eloquently put it

 is a way to interact with the people you meet on PatientsLikeMe, as well as stay up to date on what matters to you most. You’ll see updates to the people, conditions, organizations, symptoms, treatments and forum threads you follow and have an opportunity to comment on those updates.

In a most Twitter-like fashion you follow others and they follow you (you even use the @handle to mention others), and the merry support game begins.

Notably, it’s also a great tool for charting your illness’s ups and downs. You can create a graph for just about anything, from Quality of Life to hospitalizations, to your mood to weight to lab results. The site will generate doctor visit sheets with lists of current treatments and symptoms charts.

The more detailed the information you put in, the better it’s able to match you with followers with whom you can connect and relate.

It thus operates–most ably–as a support site, and as place to record the details and history of your illness.

Not too shabby, given the cost.

Related articles
  • Getting Support for Bipolar Disorder Online: Some Suggestions for Streamlining the Process (candidaabrahamson.wordpress.com)
  • New e-patient network wants to take the hassle out of finding health info online (medcitynews.com)
  • The Match.coms of clinical trials make it easier to connect patients, researchers (medcitynews.com)

TAGGED:ePatientPatientsLikeMe
Share This Article
Facebook Copy Link Print
Share

Stay Connected

1.5kFollowersLike
4.5kFollowersFollow
2.8kFollowersPin
136kSubscribersSubscribe

Latest News

technology in medical research
The Tools Helping Medical Researchers See the Full Picture
News Technology
August 3, 2025
5 Steps to a Promising Career as a Healthcare Administrator
5 Steps to a Promising Career as a Healthcare Administrator
Health
July 31, 2025
holistic dental
Holistic Dentist Services Are Natural and Safe
Dental health Specialties
July 28, 2025
botox certification
Help Improve People’s Skin Health Via Botox Certification
Skin Specialties
July 22, 2025

You Might also Like

#hcsmca: A Social Network Analysis of Our Community

February 8, 2014
BusinessHealth careHospital AdministrationSocial Media

5 Effective Ways to Market Healthcare to Millennials

November 20, 2017
How to engage journalists through social media
eHealthHospital AdministrationSocial Media

Should Hospital PR Engage Journalists with Social Media?

February 25, 2014

Social Media, Smartphones and Sandy

November 9, 2012
Subscribe
Subscribe to our newsletter to get our newest articles instantly!
Follow US
© 2008-2025 HealthWorks Collective. All Rights Reserved.
  • About
  • Contact
  • Privacy
Welcome Back!

Sign in to your account

Username or Email Address
Password

Lost your password?