Technology has enabled us to collect vast amounts of medical data from myriad sources. But most of this data is locked in silos and unavailable for use by researchers. Performing a medical or genomic experiment on a human requires informed consent and careful boundaries around privacy. But what if the data that results, once scrubbed of identifying marks, was released into the wild?
Technology has enabled us to collect vast amounts of medical data from myriad sources. But most of this data is locked in silos and unavailable for use by researchers. Performing a medical or genomic experiment on a human requires informed consent and careful boundaries around privacy. But what if the data that results, once scrubbed of identifying marks, was released into the wild?
At WeConsent.us, John Wilbanks thinks through the ethical and procedural steps to create an open, massive, mine-able database of data about health and genomics from many sources.