By using this site, you agree to the Privacy Policy and Terms of Use.
Accept
Health Works CollectiveHealth Works CollectiveHealth Works Collective
  • Health
    • Mental Health
    Health
    Healthcare organizations are operating on slimmer profit margins than ever. One report in August showed that they are even lower than the beginning of the…
    Show More
    Top News
    benefits of using protein powder to build muscles
    Protein Powder for Muscle Mass: Everything You Need to Know
    December 12, 2021
    changes brought on by blockchain in healthcare
    Technology In The Healthcare Industry
    March 28, 2022
    What Does Core Body Temperature Say About Health?
    August 17, 2022
    Latest News
    Grounded Healing: A Natural Ally for Sustainable Healthcare Systems
    May 16, 2025
    Learn how to Renew your Medical Card in West Virginia
    May 16, 2025
    Choosing the Right Supplement Manufacturer for Your Brand
    May 1, 2025
    Engineering Temporary Hospitals for Extreme Weather
    April 24, 2025
  • Policy and Law
    • Global Healthcare
    • Medical Ethics
    Policy and Law
    Get the latest updates about Insurance policies and Laws in the Healthcare industry for different geographical locations.
    Show More
    Top News
    FDA Approves Diabetes Pill
    May 2, 2011
    Patient Gets Drunk on Hand Sanitizer
    June 20, 2011
    Cultivating Health Improvement
    July 20, 2011
    Latest News
    Building Smarter Care Teams: Aligning Roles, Structure, and Clinical Expertise
    May 18, 2025
    The Critical Role of Healthcare in Personal Injury Recovery: A Comprehensive Guide for Victims
    May 14, 2025
    The Backbone of Successful Trials: Clinical Data Management
    April 28, 2025
    Advancing Your Healthcare Career through Education and Specialization
    April 16, 2025
  • Medical Innovations
  • News
  • Wellness
  • Tech
Search
© 2023 HealthWorks Collective. All Rights Reserved.
Reading: Personal Spirometry and the Cystic Fibrosis Patient
Share
Notification Show More
Font ResizerAa
Health Works CollectiveHealth Works Collective
Font ResizerAa
Search
Follow US
  • About
  • Contact
  • Privacy
© 2023 HealthWorks Collective. All Rights Reserved.
Health Works Collective > Wellness > Home Health > Personal Spirometry and the Cystic Fibrosis Patient
Home Health

Personal Spirometry and the Cystic Fibrosis Patient

Jeanne Barnett
Last updated: October 3, 2012 4:47 am
Jeanne Barnett
Share
9 Min Read
SHARE

As a moderator/founder of a vibrant on line social health community: cysticfibrosis.com, I can attest to hundreds of messages where e-patients are discussing their PFT (pulmonary function test numbers).  Members  are so identified with these numbers, they may add them to their signatures along with their genetic mutation codes.

As a moderator/founder of a vibrant on line social health community: cysticfibrosis.com, I can attest to hundreds of messages where e-patients are discussing their PFT (pulmonary function test numbers).  Members  are so identified with these numbers, they may add them to their signatures along with their genetic mutation codes.

Imagine how 21st century, powerful and logical it would be for the patients to own their own spirometers.  Instead of waiting 4 times a year to visit a doctor to have the number read, they could trigger their own digital device, monitor their own lung capacity and then beam the results to their doctors and maybe even their social community.

In a recent survey, we found 75 % of the members experienced the shock of lower numbers than they expected, when measured at the doctor/center/s offices quarterly.

Now, with telemedicine, these numbers can be marched into data banks in the cloud where they are compared to other patients with their medications, genetic mutations, environmental triggers and more!

This type of quantification is just what Kevin Kelly (the founder of Wired Magazine) has been evangelizing in his work: “quantified self”.

The latest smart home/personal spirometers are an incredible aid to the “research laboratory” that is each CF patient,  with a battery of 131 medications and many different delivery systems.  Their health care is 22 times as expensive as a healthy person and immeasurably more complicated. 

These latest spirometers are miniaturized and require little energy to operate, they have the power to bring the research laboratory to the patient in ways never before possible. 43% of the patients live 50 miles or more from the clinic and travel long distances to research facilities for clinical trials.

  

 

My company, Medrise, designed and conducted a survey to evaluate the demand for and perceived benefits of home-based pulmonary function testing in patients with cystic fibrosis. This patient community with complicated lung-care needs, numbers about 30,000 in the United States alone and roughly 70,000 worldwide.

CF patients typically undergo pulmonary function testing, also known as spirometry, at medical facilities during quarterly check-ups, during an exacerbation to gauge the severity of the decline, or after a period of antibiotic treatment in order to determine its efficacy. Depending on the extent of information sought, spirometry can take less than a minute and up to about fifteen minutes. The results, available immediately, reveal the degree of obstruction and restriction of air movement in a person’s lungs. Moreover, when compared with past test results, spirometry offers insight into trends in the patient’s condition. 

Personal spirometers are currently available for purchase, yet the majority of CF patients, as well as people with COPD and asthma, do not own one. We designed a survey to assess the CF community’s interest in testing and tracking their lung function more frequently and at home. Our survey was inspired by a study at Johns Hopkins which found that home spirometry twice daily could detect an exacerbation an average of 16 days before patients knew to seek care for their symptoms.

 We asked patients and caregivers who are members of the site CysticFibrosis.com for their thoughts and preferences regarding home spirometry. Five hundred patients and caregivers responded to the survey. After establishing the age, gender, geographic location, and some specifics about conditions and comorbities, we had the respondents rate their interest in using a spirometer at home, estimate how often they would want to perform the testing, and comment on the possible consequences of having access to home pulmonary function testing and tracking.

 Survey respondents predicted significant outcomes of having home spirometry, including:

  • The ability to initiate treatment for exacerbations sooner, possibly avoiding some of the costly hospitalizations that are typical of cystic fibrosis.

 • An improved understanding of and motivation to complete the comprehensive daily treatment regimen for cystic fibrosis.

 • Enhanced ability to assess and manage the factors that influence pulmonary function e.g new treatments, pulmonary rehab, CF-related diabetes, secondary asthma, hormonal changes, weather, and even home renovations.

 • More accurate information to offer medical professionals when experiencing an exacerbation or having a routine evaluation.

 • A stronger partnership with medical professionals. Our survey indicates a high level of interest in home spirometry.

 The majority of patients and caregivers believe that this relatively low-cost device has the potential to improve their condition, be cost-saving in the long run, and enhance their relationship with their doctors.

 While the response to the idea of home spirometry was overwhelmingly positive, Medrise sought to uncover barriers to using the device. Our survey showed that concerns about home spirometry fell into two main categories:

 • Accuracy:  A few survey respondents weren’t sure they or their children would know how to use the device and questioned if the data would be accurate without professional administration of the testing.

 • Interpretation:  A small number of survey respondents questioned whether they would be able to interpret the significance of trends in the data—whether a change was large enough to be meaningful, and how to interpret changes in conjunction with other symptoms.

 Like other home-based durable medical equipment (nebulizer/compressors, high-frequency chest compression systems, oxygen therapy, blood-glucose monitors), home spirometry will require an instruction and learning phase in order to be used accurately and with confidence.  Patients and caregivers need brand-specific videos and manuals for training in technique and as an on-going reference.   We are confident the testing at home, which involves inhaling as deeply as possible and exhaling as forcefully and for as long as possible, can be done as accurately as in the office.

 The second concern of patients and caregivers—that the data will be difficult to interpret and could lead to inaccurate panic or disregard—is also a function of training.  Patients and caregivers will need to be instructed to use their spirometer in conjunction with their analysis of other symptoms (fever, weight and appetite, mucus production and cough, oxygen levels).  When making an appointment with a doctor to analyze an exacerbation and decide on a course of action, the trend in spirometry leading up to the visit can be combined with other information (radiography, sputum cultures…etc.) to create a more clear picture of the situation.

 In the presence of these concerns, the majority of CF patients and caregivers still believe they will benefit from and be inspired by being able to track their pulmonary function more closely and how it interacts with their complicated care regimens (airway clearance, inhaled and IV antibiotics, nutrition and weight maintenance, diabetes management, allergen avoidance, exercise…etc.).  Home spirometry will provide deeper data to patients and medical professionals for more knowledgeable decision-making and, according to the study by Johns Hopkins, it may alert patients to exacerbations over two weeks earlier than without home spirometry. 


[1] http://www.hopkinschildrens.org/taking-spirometry-to-the-home.aspx

Pediatric Pulmonology 2009;44(S32):343-44.

TAGGED:personal spirometer
Share This Article
Facebook Copy Link Print
Share

Stay Connected

1.5kFollowersLike
4.5kFollowersFollow
2.8kFollowersPin
136kSubscribersSubscribe

Latest News

Do You Grind Your Teeth at Night? Here’s How Night Guards and TMJ Treatments Can Help
Do You Grind Your Teeth at Night? Here’s How Night Guards and TMJ Treatments Can Help
Dental health
May 21, 2025
The Secret To A Confident Smile: Top Tips For Better Teeth
The Secret To A Confident Smile: Top Tips For Better Teeth
Dental health
May 21, 2025
Clinical Expertise
Building Smarter Care Teams: Aligning Roles, Structure, and Clinical Expertise
Health care
May 18, 2025
Grounded Healing: A Natural Ally for Sustainable Healthcare Systems
Grounded Healing: A Natural Ally for Sustainable Healthcare Systems
Health
May 15, 2025

You Might also Like

Home HealthWellness

Why Plant-Based Eating Is So Good For Your Health

July 28, 2020

Consumers Putting Off Medical Care & Risking Health

December 1, 2011

AIDS Stages of Care – Three So Far; Will Number Four Come Soon?

June 29, 2011

How to Make Your Hair Look Thicker and More Voluminous

June 5, 2018
Subscribe
Subscribe to our newsletter to get our newest articles instantly!
Follow US
© 2008-2025 HealthWorks Collective. All Rights Reserved.
  • About
  • Contact
  • Privacy
Welcome Back!

Sign in to your account

Username or Email Address
Password

Lost your password?