What the FDA’s New Social Media Guidance Means for Marketers
Business
230 views
Business
230 views

What the FDA’s New Social Media Guidance Means for Marketers

Pam Todd - July 11, 2014

Little by little, and in no particular order, the FDA is rolling out new recommendations for use of internet and social media by the pharmaceutical industry. Little…

Medical Innovations
203 views

Rare Diseases and the Promise of Genetics [VIDEO]

Pam Todd - May 2, 2014

Sharon Moalem, MD, PhD, is not just an award-winning researcher and physician, the founder of 2 biotech companies, and the inventor of a tool to help diagnose…

From Patient Partner to Patient Leader
eHealth
256 views
eHealth
256 views

From Patient Partner to Patient Leader

Pam Todd - March 20, 2014

Remember when patients were passive receivers of care and the only thing that mattered was what the doctor thought? Neither do I. Remember when patients were passive…

Why Transparency Matters More Than Ever
Business
227 views
Business
227 views

Why Transparency Matters More Than Ever

Pam Todd - March 9, 2014

Relationships are important in rare—and so are reputations. Rare disease communities are often small and closely knit. Patients and caregivers rely on each other for advice, opinions,…

What Patient Centricity Means to Marketers
Business
213 views
Business
213 views

What Patient Centricity Means to Marketers

Pam Todd - January 8, 2014

In 2011, when Lilly and Disney teamed up to create a series of books for kids with type 1 diabetes, they chose to distribute them exclusively through…

Hacking the Diagnosis of Rare Diseases
eHealth
169 views
eHealth
169 views

Hacking the Diagnosis of Rare Diseases

Pam Todd - December 19, 2013

Ed Fennell is a problem solver. After spending 35 years running a private consulting business, he’s turned his attention to something closer to his heart – solving…

Creating Hope for Undiagnosed Patients
Policy & Law
167 views
Policy & Law
167 views

Creating Hope for Undiagnosed Patients

Pam Todd - December 9, 2013

Most rare disease patients spend a good portion of their lives coping with a condition that is either undiagnosed or misdiagnosed. Some of them die of a…

Why Rare Disease Caregivers Inspire Me
Home Health
183 views
Home Health
183 views

Why Rare Disease Caregivers Inspire Me

Pam Todd - November 19, 2013

If you want to know the heights of love, compassion, determination, and self-sacrifice that people can rise to, just sit down and talk to someone who is…

New Resources That Will Help Speed Diagnosis of Rare Diseases
Diagnostics
212 views
Diagnostics
212 views

New Resources That Will Help Speed Diagnosis of Rare Diseases

Pam Todd - October 22, 2013

The rare community has made huge strides in the 30 years that have elapsed since the Orphan Drug Act was passed. There are more new treatments and…

Diagnosis Is a Cause Everyone Can Get Behind
Diagnostics
177 views
Diagnostics
177 views

Diagnosis Is a Cause Everyone Can Get Behind

Pam Todd - October 10, 2013

One of the most moving moments (and there were many of them) at Global Genes’ recent patient summit was when Heather Long, founder of the Texas based…