Orphan Lit: Patient Perspective on the Risk Benefit Trade-Off
Continuing extrovertic’s interest in Orphan Drug Literature, I read an inspiring book, “Reaching Beyond the Clouds,” by Cindy L. Abbott. The book takes readers from Cindy’s diagnosis with the rare disease…
Serendipity and Personalization and Connected Health
In a world where most folks change jobs every couple of years, people are often amazed to hear that I started work in connected health 19 years ago. Implicit in…
Americans More Sedentary Than Ever
A new government study says that Americans are more sedentary than ever, and that includes people who exercise regularly. A new government study says that Americans are more sedentary than…
Cancer Patients Seeing the Ripple Effects from Sequestration
Summary: The Patient Protection Affordable Care Act (PPACA) seeks to provide accessible affordable care to more Americans. However, the ripple effects of the sequestration (to Medicare patients undergoing cancer treatments)…
Boston, Health Foo, and The Open Door
On Friday I was painting a picture of blood in a park.It is a beautiful painting that seems at first serene, but as one looks upon it more deeply there…
23: Number of Useful Internet Marketing Stats in This Healthcare Post
On any given day—every day, actually—you and I and everyone in the country are the primary landing zone for over 5,000 advertising and marketing messages. On any given day—every day,…
The Slow Work of Healing
I just finished reading "Tattoos on the Heart" by Gregory Boyle. I came to it partly via Krista Tippett's conversation with him last summer at the Chautauqua Institute, and partly…
Six Secrets to Ramp up Your Revenue Cycle
With the focus on the clinical side of your healthcare delivery system, many organizations have a tendency to overlook their revenue cycle. Adequate reimbursement, more timely reimbursement, and an increase in…
Response to ONC RFI on Advancing Interoperability of EHRs and HIE
At last weekend's #healthfoo I proposed that one unconference session be devoted to preparing a comment letter responding to the ONC RFI on Advancing Interoperability and Health Information Exchange. At last…
Highlights from the World Orphan Drug Congress 2013
A key theme of the World Orphan Drug Congress 2013 was the need to innovate when it comes to the rare disease space. Presenters shared how rare diseases necessitate a…
