By using this site, you agree to the Privacy Policy and Terms of Use.
Accept
Health Works CollectiveHealth Works CollectiveHealth Works Collective
  • Health
    • Mental Health
    Health
    Healthcare organizations are operating on slimmer profit margins than ever. One report in August showed that they are even lower than the beginning of the…
    Show More
    Top News
    improving patient experience
    6 Ways to Improve Patient Satisfaction Within Hospitals
    December 1, 2021
    degree for healthcare job
    What Are The Health Benefits Of Having A Degree?
    March 9, 2022
    custom software development is changing healthcare
    Digital Customer Journey Mapping and its Importance for Healthcare
    July 21, 2022
    Latest News
    Grounded Healing: A Natural Ally for Sustainable Healthcare Systems
    May 16, 2025
    Learn how to Renew your Medical Card in West Virginia
    May 16, 2025
    Choosing the Right Supplement Manufacturer for Your Brand
    May 1, 2025
    Engineering Temporary Hospitals for Extreme Weather
    April 24, 2025
  • Policy and Law
    • Global Healthcare
    • Medical Ethics
    Policy and Law
    Get the latest updates about Insurance policies and Laws in the Healthcare industry for different geographical locations.
    Show More
    Top News
    Can Thinking Younger Make You Live Longer?
    April 20, 2011
    Image
    Obesity’s Outlook Unchanged
    June 13, 2011
    When It’s An Emergency Elderly Not Treated As Well in Hospitals
    July 16, 2011
    Latest News
    Building Smarter Care Teams: Aligning Roles, Structure, and Clinical Expertise
    May 18, 2025
    The Critical Role of Healthcare in Personal Injury Recovery: A Comprehensive Guide for Victims
    May 14, 2025
    The Backbone of Successful Trials: Clinical Data Management
    April 28, 2025
    Advancing Your Healthcare Career through Education and Specialization
    April 16, 2025
  • Medical Innovations
  • News
  • Wellness
  • Tech
Search
© 2023 HealthWorks Collective. All Rights Reserved.
Reading: New Mobile App Connects Duchenne Families to Clinical Trials
Share
Notification Show More
Font ResizerAa
Health Works CollectiveHealth Works Collective
Font ResizerAa
Search
Follow US
  • About
  • Contact
  • Privacy
© 2023 HealthWorks Collective. All Rights Reserved.
Health Works Collective > eHealth > Mobile Health > New Mobile App Connects Duchenne Families to Clinical Trials
eHealthMobile Health

New Mobile App Connects Duchenne Families to Clinical Trials

Wendy White
Last updated: April 30, 2013 6:53 am
Wendy White
Share
3 Min Read
mobile health app
SHARE

mobile health appI have been privileged to know Pat Furlong for the past several years and work alongside her on the board of the National Organization for Rare Disorders (NORD).

mobile health appI have been privileged to know Pat Furlong for the past several years and work alongside her on the board of the National Organization for Rare Disorders (NORD). In 1984, doctors diagnosed her two sons, Christopher and Patrick, with Duchenne Muscular Dystrophy (Duchenne), a fatal genetic disorder that slowly robs young men of their muscle strength. Pat didn’t accept the doctor’s advice that “there’s no hope and little help.” Instead, she immersed herself in Duchenne, working to understand the pathology of the disorder, the extent of research investment, and the mechanisms for optimal care. Her sons lost their battle with Duchenne in their teenage years, but she continues to fight—in their honor and for all families affected by Duchenne.

In 1994, Pat, together with other parents of young men with Duchenne, founded Parent Project Muscular Dystrophy (PPMD) to change the course of Duchenne and, ultimately, to find a cure. PPMD is the largest non-profit organization in the United States solely focused on Duchenne. Today, Pat continues to lead the organization and is considered one of the foremost authorities on Duchenne in the world.

Duchenne Central
I give this background to explain why the team at Siren Interactive was so happy to collaborate with PPMD on a mobile app titled Duchenne Central. The app, which is now available for free download for Apple and Android devices, is an easy-to-use and on-the-go tool to locate clinical trials and clinics and view and share the latest Duchenne news.

More Read

mHealth
What To Know About How mHealth Apps Benefit Heart Patients
Physicians and Negative Online Reviews: Think Before You Sue
HIMSS 2013: Radiology IT Undergoing Radical Changes and Meaningful Use is Just the Beginning (Part II of II)
Digital Health Illustrated: Big Health Data’s Dark Side [VIDEO]
Are Your Hospital’s Physicians’ Using “Doctor-Only” Social Networks?

“Currently, there are no FDA-approved treatments for Duchenne; however, there are several potential therapies in development and currently in clinical trials,” says Pat. “It’s essential that patients and their families have ongoing access to information on the latest clinical trials. We’re proud to bring this new resource to the Duchenne community.”

Especially for rare disorders, enrolling enough patients in a clinical trial can be challenging. With the explosive growth of mobile devices, people are using their smartphones to access information 24/7 whenever and wherever they need it. This app will make it easier for Duchenne families to find the right resources. We’re pleased to help provide the app to the Duchenne community and to be able to support the amazing work of PPMD.

TAGGED:clinical trialsmobile apps
Share This Article
Facebook Copy Link Print
Share

Stay Connected

1.5kFollowersLike
4.5kFollowersFollow
2.8kFollowersPin
136kSubscribersSubscribe

Latest News

Clinical Expertise
Building Smarter Care Teams: Aligning Roles, Structure, and Clinical Expertise
Health care
May 18, 2025
Grounded Healing: A Natural Ally for Sustainable Healthcare Systems
Grounded Healing: A Natural Ally for Sustainable Healthcare Systems
Health
May 15, 2025
Learn how to Renew your Medical Card in West Virginia
Learn how to Renew your Medical Card in West Virginia
Health
May 15, 2025
Dr. Klaus Rentrop Shares Acute Myocardial Infarction heart treatment
Dr. Klaus Rentrop Shares Acute Myocardial Infarction
Cardiology
May 13, 2025

You Might also Like

next level success
BusinesseHealthSocial Media

7 Tips: Taking Your Social Media Persona to the Next Level

February 27, 2014

How Much Can We Demand of Consumer Connected Health?

May 5, 2014

Patient Protection and Affordable Care Act (PPACA) Impact on the Future Healthcare Workforce

July 1, 2012
consumer-driven-digital-disruption.png
BusinesseHealthMedical InnovationsMobile HealthTechnology

The Consumer-Driven, Digital Disruption in Healthcare

April 4, 2016
Subscribe
Subscribe to our newsletter to get our newest articles instantly!
Follow US
© 2008-2025 HealthWorks Collective. All Rights Reserved.
  • About
  • Contact
  • Privacy
Welcome Back!

Sign in to your account

Username or Email Address
Password

Lost your password?