A New Way to Research Rare Diseases

March 30, 2013
42 Views

It takes an average of nine years for a rare disease patient to get an accurate diagnosis, according to the National Organization for Rare Disorders. That amount of time can be very frustrating for many patients and their families.

It takes an average of nine years for a rare disease patient to get an accurate diagnosis, according to the National Organization for Rare Disorders. That amount of time can be very frustrating for many patients and their families.

That may change, thanks to a new search engine, FindZebra.com, dedicated to the diagnosis of rare diseases. Unlike popular search engines like Google and Bing, FindZebra’s algorithm only curates rare disease information available from authoritative specialized resources. This is different from Google and Bing, which search the entire web using algorithms based on a variety of other factors, sometimes delivering results with little relevancy.

FindZebra has had a lot of success in getting easy-to-find accurate information compared to typical search engines, according to a study in the International Journal of Medical Informatics. This type of information can lead to more cures of these rare diseases and, ultimately, more lives saved.

You may be interested

Where Is The Balance? Pushing Back Against Consumer Health Tech
eHealth
3 views
eHealth
3 views

Where Is The Balance? Pushing Back Against Consumer Health Tech

Larry Alton - August 18, 2017

When Republican Congressman Jason Chaffetz glibly remarked that Americans struggling to afford insurance should choose between that and their smartphones,…

What to Look for in Patient Solutions Software
eHealth
365 views
eHealth
365 views

What to Look for in Patient Solutions Software

Robert Cordray - August 17, 2017

The medical sector is one area where technology has had a significant impact, largely by providing tools that simplify many…

Can Natural Remedies Like RediCalm Decrease Stress and Anxiety?
Wellness
2 views
Wellness
2 views

Can Natural Remedies Like RediCalm Decrease Stress and Anxiety?

Ryan Kh - August 16, 2017

According to research from the National Institute of Mental Health, anxiety disorders are the most common mental illness in the…